Law firm devotes year of fundraising
The charity, which funds pioneering research in symptom alleviation and, ultimately, a cure and provides much needed care and support to the EB Community, including part funding specialist nursing support, is marking its 40th Anniversary this year.
To help celebrate this fact and raise awareness of the condition, award winning law firm Keebles has devised a packed fundraising programme supported by its dedicated employees, ranging from sporting events to raffles and a monthly Dress Down Friday. One adventurous fundraiser, trainee solicitor Kate Large, will literally be going the extra mile to raise EB awareness, tackling the Hull Inflatable 5k Obstacle Run at Beverley Racecourse in April before going on to tackle a gruelling Tough Mudder Challenge.
Money raised through Keebles’ fundraising programme could help fund research into symptom alleviation and effective treatments for the condition, including clinical trials to investigate whether a drug, Rigosertib, could be used to reduce or destroy cancer tumours caused by EB which have not responded to conventional treatments, or support projects which could make a real difference to the quality of life for people suffering from EB, including part funding specialist EB nursing care, purchasing specialist equipment or enabling people suffering from EB to enjoy a break away in one of DEBRA’s specially adapted holiday homes.
Sarah Burton, partner at Keebles, said: “Our firm has a long-standing ethos of supporting wide-ranging organisations and our team voted to help this inspirational charity which supports people suffering from EB all over the UK and funds pioneering research taking place around the world.”
DEBRA Business Development Manager, Jenny Jackson, said: “We appreciate and applaud the commitment and creativity of Keebles’ Doncaster team and wish them every success in their fundraising ventures. Only with the generous support of businesses, employees and members of the public can we continue to help the EB Community. Keebles’ support makes a real difference to people suffering from EB.”
Keebles which also has offices in Sheffield and Leeds, boosted local charities by almost £11,000 in fundraising and donations during 2017.
Donations for Kate Large’s Hull Inflatable 5k Obstacle Run at Beverley Racecourse on April 28 can be made here https://uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?pageId=875354